Yesterday was my 57th birthday. I had put the word out that I really didn't want to make a big deal out of it this year. My wife, Gale, did not like this but kept my wishes. She always does birthdays in a big way and I just didn't feel like celebrating.
Instead, I washed windows. House windows, inside and out. Though I struggled with the task a bit, it gave me a great sense of accomplishment. Plus they really needed it!
But today I feel melancholy. I deprived Gale of her fun and myself of the company of my kids and their families. I feel self-conscious though intellectually I know they can't tell my hand feels stiff and leg a bit quivery. This is going to be a rough and narrowing road!
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Happy Birthday! And here's hoping this year be an insightful, yet joyful, experience. Meet the challenges with courage,...keep up a good "fight".
ReplyDeleteThanks for this excellent blog. I am sorry for your struggles. My mother was diagnosed with CBGD last year and it continues to progress. There are not many answers available for those of us who are now familiar with CBGD, so that is frustrating. I believe people like you who share their medical history and thoughts on the internet supply powerful and positive reinforcement for all of us as we deal with this. A belated Happy Birthday to you and I hope you will continue to provide your insight. You write very eloquently!
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